Iliana on roids, needs to be immortalized! It’s been one heck of a week!
Last Wednesday, as I was driving home from work, I got a call from my husband. Iliana had another severe allergic reaction. And by severe, I mean the kind that sends us rushing to the hospital – swollen face and hives, the terrifying signs that scream anaphylaxis. Thankfully, she didn’t show the most dangerous symptom, swelling of the throat that can block breathing, but the situation was serious enough to put us on high alert.
This was Iliana’s second severe allergic reaction. The first happened when she was about eight months old, after an accidental exposure to milk. This time, the culprit was…. a banana. Not quite unripe, but not fully ripe either – you know the kind where some parts are soft and sweet and others still have that greenish bite? According to my mother-in-law, Iliana had been playing with the banana and popped a bit into her mouth, which wasn’t a concern at all, since she’s had bananas before without any issues. But within seconds, the hives began forming, and her face started to swell.
My husband gave her antihistamines right away and booked a Grab to get them to Cyberjaya Hospital. We only have one car, and I had driven to work that day, hence Grab. When they arrived, the triage team assessed her and seeing that the antihistamines had already started to suppress her symptoms, told them to wait in the regular queue. By the time I got to the hospital, they had already been waiting a while. Hours passed and although Iliana wasn’t scratching much, we started noticing new hives appearing. It wasn’t escalating but it wasn’t fully calming down either. When it was finally our turn to see the doctor, we decided to go ahead with a steroid injection, just to be safe.
What I’ve learned from Iliana on Roids :
1. Steroids need to be tapered down instead of stopped suddenly. Iliana was given a high dose at the hospital to quickly calm her allergy reaction, but reducing the dose slowly is important. Why? Because our bodies make their own steroid (cortisol) through the adrenal glands. When we take steroid meds, the body pauses its own production. Stopping suddenly doesn’t give it time to restart and that can cause something serious called adrenal crisis (fatigue, low blood pressure, vomiting, etc). Tapering also helps prevent symptoms from coming back too strongly once the meds wear off.
2. Increased appetite and thirst. Iliana’s been a bottomless pit and carbo-loading like she about to run a toddler marathon! I recently found out this is thanks to steroids boosting ghrelin, the “I’m hungry!” hormone made in the stomach. It basically flips her internal feed-me switch to maximum. Steroids also mess with aldosterone, a hormone that helps balance salt and water in the body. This can confuse her hydration signals. So even though her body’s holding onto water, her brain might still think she’s dehydrated.
3. Changes in behavior. “Who is this kid?!” – a question I asked way too many times while Iliana was on steroids. One minute she’s giggling, the next she’s raging. Steroids mess with brain chemicals like dopamine and serotonin, the ones that control mood, sleep, energy and emotional responses. When these get out of whack, it can lead to irritability, hyperactivity, anxiety and trouble winding down. Imagine all that in a toddler, whose tiny brain is still figuring out feelings 101.
4. Disrupted sleep-wake cycle. Most steroid medications are synthetic versions of cortisol – the body’s natural “get up and go” hormone. When cortisol stays unnaturally high (thanks to the meds), it throws off the body’s internal clock. High cortisol blocks melatonin, the “sleepy time” hormone, making it harder to wind down, relax or even feel tired. Iliana was already in the messy middle of dropping to one nap when this happened, so her schedule was hanging by a thread. Throw steroids into the mix, and you’ve got a nap-refusing, hangry toddler doing laps in the crib.
Im going to be honest, we did not finish the full course. We skipped the last day because things were starting to spiral, and I just couldn’t bear to watch my little baby struggle like that anymore. It’s been three days since her last dose, and I’m finally starting to see glimmers of the Iliana I know. Today, she took a glorious 2.5-hour nap, and let me tell you, I could’ve cried tears of joy. That girl needs her sleep okay.
The past few days have been intense – messy, emotional and exhausting but it’s reminded me how tough and tender our little ones are. Here’s to healing, to learning and to holding on when times are tough 💛